I started this blog a few times but hadn't quite gotten around to finishing. Sorry I haven't updated in awhile, but this will cover the past few weeks.
After my appointment with my surgeon, I called to schedule an appoitment with my oncologist at Farmington. Dr. Molin was really pushing for me to start chemo immediately. So, I met with him last Tuesday and heard what he had to say about the medicines he wants to use (Taxotere and Cytoxan) and when he thinks I should start.
He had talked with Dr. Molin and said felt differently about my need to start chemo right away. He wanted to me to look into getting a second opinion from another surgeon because Dr. Molin wants me to have a mastectomy. He doesn't want me to have to go through that because I'm so young. So, while they each have their own opinions about what I should be doing for surgery, all I know is that I want to start chemo right away. Enough with the waiting.... But even after I told Dr. Khomani that I wanted to start chemo right away and he said I could still wait a week or two, I told him, "No, I want to start now." He said, "Okay, you can start Monday or Tuesday. You choose." Of course I told him Monday.
So.. I could've started today, but I didn't. I choose to move to Minnesota for the summer. Yes.. I finally came to decision. :) I've been here in St. Paul since Thursday night. My cousin Nicole picked me up from the airport and brought me to her mom's house. They've been taking good care of me and I felt welcomed right away. My aunt took me shopping, out to dinner, and to see Minnehaha Falls. And Nicole took her daughter Sophia and I to the Mall of America today. So, I want to thank them for doing all of those things with me. :)
Nicole's friend Dayna took me to my first appointment here in Minnesota on Friday. I met with Dr. Mathew. He gave me a very direct, straightforward plan of chemo. Apparently, because my tumor grade is a 3, it means that I have one of the most aggressive forms of cancer. However, he told me that more aggressive cancers respond better to chemotherapy. He also showed me a website, which when he enters in my information: age, overall health, estrogen receptor status, histologic grade, tumor size, nodes involved, and chemotherapy generation regime (his treatment plan) he was able to show me a graph of how many women are alive and without cancer in 10 years, how many women relapse, and how many die.
Dr. Mathew's mother had breast cancer. So, knowing that he has dealt with this cancer on a personal level was comforting. He told me that he wants to fight this cancer aggressively. He wants to add 60 years to my life. And though he said, "It won't be a walk in the park.", at least I feel confident in his ability to help me.
So, after my visit with him, I met with a surgeon. He told me that basically I could choose whether or not I wanted to do a mastectomy or another lumpectomy. And I also could choose whether or not I wanted to do the surgery before or after chemo. This was stressful for me because I'm not a doctor and I didn't know what was best for me. But I had to trust that he wouldn't have given me those options unless he really supported them.
I chose to start with chemo and will follow that with a mastectomy after treatment. I would rather not have to risk a fourth surgery by going for another lumpectomy and woud rather have the piece of mind that comes with knowing that that diseased tissue is out of my body. Starting with chemo was really important to me and I'm glad I chose to start that right away. It will be eight treatments done every two weeks. So, it's a much faster and more aggressive treatment plan than Dr. Khomani had made. But I trust this plan. I want to fight it aggressively.
I've had x-rays done and an echocardiogram to get a base heart rate for me. The Adrimyacin medicine that I will be on for the first 4 sessions has been known to cause heart damage. On top of blood work, I will have an echocardiogram done every two weeks, before I have another treatment. If for any reason, my heart appears to be damaged or not working as well as it was, then they will stop using the medicine. But they told me my hearts in good shape, so hopefully it will continue to stay strong.
My aunt and I went to Easter mass on Sunday and I'm really happy that I went. It was the day before I started chemo and I was extremely nervous about it. The priest spoke of how when we suffer, God suffers, too. And that the more we love someone, the deeper we hurt for them. And most importantly, that we are never alone. God is always there. The entire mass I held back tears but the moment I was out of there I couldn't help but cry. I am scared and have been since I was diagnosed. But I found so much comfort from that mass that I plan to meet personally with this priest to talk with him about my illness and hope that he can guide me and pray for me.
I went in for my first chemo treatment on Monday. Nicole and I sat and talked with the pharmacist who answered all of my questions. She was very patient because I know some of my questions were one's that I should've asked my oncologist, but she answered what she could and was a really nice lady. I also really liked my nurse. Everyone was great. :)
I'm starting my first four treatments on Cytoxan and Adrimyacin. My last four treatments will just be on Taxotere. So far, all I've really felt is nausea. The first night I had extreme anxiety and fear of the side effects that should show up by the end of the week. Luckily I have a lot of people there to help calm me down and just tell me that I'll be okay and what I was feeling was just anxiety.
I've had my neulasta shot to help my bone marrow produce more white blood cells. I was told I might feel some discomfort today from that.. but thankfully I haven't felt anything. The nausea has really been the only thing that has remained mild and constant. But I have all top of the line nausea meds, so if I just let myself calm down, then I'm sure I will eventually be able to cope with that! :)
Last week, Nicole took me the Aveda Salon so I could cut my hair short. They were so amazing there, I couldn't believe how nice everyone was! The haircut was normally $100, but they gave it to me for free. And once my hair does start to fall out, I can go in to get my head shaved. They also will style my wig and give me massages, pedicures, manicures, etc. all for free! And the American Cancer Society gave me a wig made from real hair for free before I started treatment. I just have to get it styled, but it's a dirty blonde color about shoulder length.. I think it's pretty. :) And they also gave me a few hats to sleep with so my head doesn't get cold at night. I have to say that cancer patients are treated so incredibly well. People just want to help make things easier on you. I really hope that all sick people recieve care like I've been getting. Once my hair does grow back, I'm going to donate it to the American Cancer Society. Hopefully someone else can use it while they go throught treatment. :)
And I'm still recieving lots of phone calls, gifts, cards, postcards, flowers, candy, meals, transportation, books, etc. A guy my mom works with signed me up for 3 months of Netflix to entertain me while I go through treatment. I am so very grateful for everyone that is trying so hard to show me that they care! I can't even begin to describe how much it means to me. So, thank you so much!! And if you haven't heard from me, please bear with me! I'm not ignoring you, I've just had a lot on my mind. But just know that I do appreciate everything you're doing to help! :) Just keep praying for me!!
I will be okay. :)
Positives!
My family and friends have been so supportive!
My boyfriend is amazing!
I have finally started chemo! One down, 7 more to go!
Spring is here!
My birthday is coming up!
I know I'm loved by so many people!
I trust in the Lord to get me through this!